my name is Mia
This is a website all about me and my condition. I have a rare genetic disorder called CDKL5. This is a variation of Retts Syndrome (MECP2) a neurological disorder affecting over 10,000 girls born every year. CDKL5 is an extremely rare variation of this. With only 19 girls in the world with this condition (as of February 2007) I am a very special little girl indeed. You can read all about me and my story
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